Michael's Journey
See how Michael views his Duchenne as more of a special ability than a disability, and hear why taking VILTEPSO makes his family optimistic for the future.
How would you say Michael is doing now?
Nadia Nushtayev, Michael’s mom
Long story short, we are more optimistic right now about Michael’s future than we were seven years ago, when he was just diagnosed.
What’s it like with Michael receiving VILTEPSO at home?
Nadia Nushtayev, Michael’s mom
We live in such a remote area. There is not much around here. We used to drive 2 hours each way for Michael’s infusions. Now, we are very grateful that Michael is able to get his infusions at home, so we don’t have to travel. We have a home health nurse who comes once a week. She takes his vitals. It’s all done in our house.
What’s it like taking VILTEPSO?
Michael Nushtayev
I’ve been taking VILTEPSO about a year. Taking VILTEPSO at home is great because we don’t have to drive two hours each way. And I can get more time to do things I like to do, like play music.
What types of exercises do you do?
Michael Nushtayev
I do the butterfly exercise, hamstring stretches, and Achilles lengthening. These help me with mobility. Also, we go swimming three times a week. I splash around in the pool, and my brothers taught me to swim better. Swimming feels nice, especially when my feet have been sweating the entire day.
If you could say one thing to someone with Duchenne, what would it be?
Michael Nushtayev
I would say to never give up.
Explore some of our other VILTEPSO Heroes
Roland
4 years old
Hear Roland’s parents and grandparents describe how Roland was able to start VILTEPSO soon after being diagnosed,...
Diego
19 years old
Hear Diego’s mom Leslie explain why she moved with her sons to the U.S. so Diego could get access to VILTEPSO,...
Mason
11 years old
Hear how Mason gets his weekly infusions at home with a registered nurse, and listen to his mom Rebecca’s...
Roland
4 years old
Hear Roland’s parents and grandparents describe how Roland was able to start VILTEPSO soon after being diagnosed,...
Diego
19 years old
Hear Diego’s mom Leslie explain why she moved with her sons to the U.S. so Diego could get access to VILTEPSO,...
Mason
11 years old
Hear how Mason gets his weekly infusions at home with a registered nurse, and listen to his mom Rebecca’s...
*These stories describe unique experiences with VILTEPSO and are not intended to represent the average individual’s response. Individual patient results with VILTEPSO may vary.
Learn about VILTEPSO’s efficacy data, and
the four-year, open-label extension study
See Efficacy & Safety Data
